The Down Syndrome Family Alliance of Greenville


Our Mission:

The Down Syndrome Family Alliance of Greenville is a non-profit organization whose mission is to enrich the lives of people affected by Down Syndrome by providing support and education through the sharing of ideas and resources and promoting awareness and community involvement.

Our Vision:

The DSFAG wants to be recognized by people with Down syndrome and their families, educators, health care professionals, and the community-at-large as the preeminent organization in Upstate South Carolina for information, networking, and advocacy for and about Down syndrome.

Down Syndrome Family Alliance of Greenville
29 North Academy Street
Greenville, SC  29601

The DSFA Board meets monthly at St. Francis Hospital.  

We are also supported by The Meyer Center located on Rutherford Road in Greenville.

 

 

Welcome to the

Down Syndrome Family Alliance of Greenville

 

Finding Normal


Being told that your child has a disability is something no parent ever wants to hear.

You don't want to let go of the dreams you have for your child. 

You don't want to face the fact that your life is not going to be what you’ve expected. 

You grieve, and then at some point you have to pick yourself up and find your “new” normal…  your new dreams… your new hopes… your new goals.  You go into uncharted water, many times alone.

Our daughter, Snow Parrott, was diagnosed with Down syndrome within the first 24 hours of life.  She and her twin brother, JP,...(read more)

 
 

 

What is Down Syndrome?

"Down Syndrome is a chromosomal disorder that includes a combination of birth defects.  Affected individuals have some degree of intellectual disability, characteristic facial features and, often, heart defects and other health problems.  The severity of these problems varies greatly" among individuals with Down Syndrome.  

In the United States, it is estimated that 1 in 800 births may result in a child being born with Down Syndrome.  This makes Down Syndrome one of the most common genetic birth defects.  There are nearly 500,000 individuals with Down Syndrome living in the US.

www.marchofdimes.com

Watch a video from young Lydia Winans, a girl with Down syndrome, as she explains how to do three-digit addition and speaks about carbohydrates!  Her mother is speaking at a conference in Chicago in May, 2012 on biomedical options for individuals with Trisomy 21.

 

 


Watch a news video of David Andrews, a high school student with Down Syndrome who becomes a starter for his high school basketball team!  Very cool!